Latest Outputs (Accepted within the last 12 Months

Mid-term Dissemination Report - [Others] [D.5]
prOmoting evidence-bASed rEformS (OASES)

Type: Document, reports...

Published on: 15/09/2022

This deliverable aims to summarize at a mid-project term the activities carried out for dissemination purposes.

Interim Evaluation Report - [Others] [D.9]
prOmoting evidence-bASed rEformS (OASES)

Type: Document, reports...

Published on: 15/09/2022

Interim evaluation of all project management activities to ensure smooth running of the project

Registries: Alignment of the data collected with the data set defined by the EC - [Others] [D.8]
SGA grant proposal year 3 to 5 for ERN RITA. (ern rita)

Type: Document, reports...

Published on: 14/09/2022

Development of collaboration with EC through ERDRI-DOR Survey on existing biobanks. Comparison of minimal data set and data currently collected. Development of recommendations for the creation of a re...
Development of collaboration with EC through ERDRI-DOR Survey on existing biobanks. Comparison of minimal data set and data currently collected. Development of recommendations for the creation of a registry. Publication

Research: Contributions to patient centred research and collaborative research projects (e.g. EJP on RD) - [Others] [D.13]
SGA grant proposal year 3 to 5 for ERN RITA. (ern rita)

Type: Document, reports...

Published on: 14/09/2022

Quarterly teleconferences to discuss collaborative projects, strengthening existing collaborations in projects with a real prospect of bringing demonstrable patient benefits, knowledge transfer within...
Quarterly teleconferences to discuss collaborative projects, strengthening existing collaborations in projects with a real prospect of bringing demonstrable patient benefits, knowledge transfer within the ERN RITA context, contribute to the development of the pillars of EJP on Rare Diseases.

Final report: Integration into national policies & sustainability" plan - [Others] [D.16]
European Joint Action on Vaccination (EU-JAV)

Type: Document, reports...

Published on: 14/09/2022

Draft 1: Outline of the report including topics as vaccine hesitancy (WP8), harmonization of vaccine schedules and vaccine surveillance tools (WP5), vaccine supply and preparedness (WP6) and vaccine R...
Draft 1: Outline of the report including topics as vaccine hesitancy (WP8), harmonization of vaccine schedules and vaccine surveillance tools (WP5), vaccine supply and preparedness (WP6) and vaccine R&D priority setting framework (WP7)
Draft 2: Preliminary draft, including overview of the priorities identified by the MS and to the outcomes and the deliverables of the WPs5-8 that need to be promoted at the national level (M30)

Final & validated recommendations (Final Version) – M36