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European Collaboration on Dementia [EuroCoDe] [2005108] - Project
General objectives

The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these actors to identify ways of developing synergies and a closer collaboration on a European level. For the definition of these indicators, the network to bring together a number of established pan-European organisations, European projects and informal collaborations, such as the Cochrane Dementia and Cognitive Improvement Group, the European Alzheimer`s Disease Consortium, the European Association of Geriatric Psychiatry, the Dementia Panel of the European Federation of Neurological Societies, the INTERDEM (Early detection and timely intervention in dementia) group, the International Association of Gerontology (European Region) and the North Sea Dementia Research Group. Recognising the global dimension of dementia and the need to extend its collaborative effort, Alzheimer Europe would furthermore like to actively involve Alzheimer`s disease International. This network would respond to the objectives of the Community Action Programme concerning the creation of a sustainable health monitoring and information system for Alzheimer`s disease and other forms of dementia. Particular attention would be paid to the development of information and the definition of indicators relating to the prevalence, diagnosis, treatment and management of Alzheimer`s disease and related disorders, as well as the risk factors and potential risk reduction or prevention strategies for this group of diseases. Finally, the socio-economic impact of dementia would be studied, as well as the social support provided by Member States to people with dementia and their carers.

Strategic relevance and contribution to the public health programme

Health information strand. Developing strategies and mechanisms for preventing, exchanging information on and responding to non-communicable disease threats, including gender specific health threats and rare diseases. The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these actors to identify ways of developing synergies and a closer collaboration on a European level.
For the development of these guidelines and indicators, the network brings together a number of established pan-European organisations, European projects and informal collaborations, such as the Cochrane Dementia and Cognitive Improvement Group, the European Alzheimer`s Disease Consortium, the European Association of Geriatric Psychiatry, the dementia panel of the European Federation of Neurological Societies, the INTERDEM (Early detection and timely intervention in dementia)group, the International Association of Gerontology (European region) and the North Sea Dementia Research Group. Recognising the global dimension of dementia and the need to extend its collaborative efforts, Alzheimer Europe to furthermore actively involve Alzheimer`s disease International.

Methods and means

In general, the methodology of the various work packages of this project following a similar methodology: 1. An extensive literature search tol be conducted in scientific journals and specialised literature and specific attention to be given to involving the membership at large of the various European network partners in this process (for the work package on support systems, this literature search to be supplemented by a survey conducted in the various Member states of the European Union and the applicant countries), 2. The collected information to be included in a database and made available to other partners of the network, 3. He information to be discussed and analysed by the working group and a report of the analysis to be presented in a repor, 4. The results to be further discussed within the working group and with the steering committee in view of the development of consensual guidelines, recommendations or best practices, 5. The draft guidelines, recommendations and best practices to be circulated to the extended membership of the network for consultation, 6. The work package leader and working group to analyse the feed back received and prepare a final draft which to be submitted to the steering committee of network partners for approval, 7. After formal approval, the guidelines, recommendations ot reports on best practices to be circulated to interested third parties for endorsement.

Expected outcomes period

Work package 1: Coordination of the project; Work package 2: Dissemination of the results; Work package 3: Evaluation of the project; Work package 4: Social Support Systems; Work package 5: Diagnosis and treatment; Work package 6: Psycho-social interventions; Work package 7: Prevalence rates; Work package; 8: Socio-economic impact of dementia; Work package 9: Risk factors and prevention

Details
Start date: 01/01/2006
End date: 01/01/2009
Duration: 36 month(s)
Current status: Finalised
Programme title: First Programme of Community action in the field of public health (2003-2008)
EC Contribution: € 843 019,00