EuroWilsoN`s (EW) mission is to improve quality of care and access to multi-disciplinary expertise for EU patients with Wilson`s disease (WD). EW was founded in 2004 through the FP6 programme(EW (LSHM CT2004 503430), and is currently funded by the European Commission Directorate General for Health and Consumers operating grant 2010. It has achieved:

- A European multidisciplinary network for sharing expertise in patient management. A multidisciplinary approach is particularly necessary in WD which has variable clinical manifestations
- A network composed of all stakeholders concerned by WD: clinicians, research scientists, patients, patient organisations, regulatory authorities and industry
- A WD patient registry collecting longitudinal data
- External molecular quality network
- Contribution to the development of recent guidelines
- A structure for patient groups to network and share experience

EW`s goals include maintaining and enhancing this network; the French centre of expertise for WD serves as a network model. The network includes all stakeholders involved in patient care: medical, scientific para-medical, EU authorities and patients` associations. EW will:

- Promote exchange between participants
- Provide up-to-date disease information on its website (eurowilson.org) and Orphanet
- Develop and publish evidence based clinical guidelines
- Develop telemedicine within the network
- Enhance the registry to provide epidemiological data, outcome indicators, country comparisons and to facilitate collaborative research and public health projects
- Support patients and patient associations in the EU
- continue to serve as a research and knowledge centre for WD

Members of Eurowilson are actively participating in European and international activities with the aim to transfer knowledge from this network to other networks, patient regsitries and to national authorities and policy makers. We serve the European Committee of Experts in Rare Disease (EUCERD) and the International Rare Disease Research Consortium (IRDiRC).
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Mission: To support Member Associations in developing the role that dietitians have in reducing inequalities & improving nutritional health in Europe.
Vision: EFAD, national dietetic associations (NDAs) and dietitians are recognised leaders in the field of dietetics and nutrition. We will continue to pro-actively initiate & grow partnerships in order to improve nutritional health, reduce socioeconomic health inequalities & contribute to economic prosperity. To achieve our vision, EFAD supports the highest quality of dietetic education, professional practice, research activity & partnership.
Values: EFAD is a not-for-profit body pursuing no political or religious ends. Our values of fair, open, non-discriminatory, supportive & ethical behaviour guide our decisions, approach to partnership, communication & collaboration with our stakeholders.
Strategic Aims: EFAD supports its members to:

� develop dietetics on a scientific & professional level in the common interest of members
� facilitate communication between NDAs & other organisations: professional, educational & governmental
� encourage better nutrition for the population of Europe
� promote the development of the dietetic profession

By embedding dietetic education, professional practice and research activity in dietetics, we enable high quality engagement at all levels, thus addressing health determinants and creating supportive environments for healthy lifestyles & prevention of disease through nutrition.
Communication of our aims and objectives is achieved by fostering exchange of knowledge, best practice promotion and action with and between our stakeholders. EFAD is a member of key NGOs (eg EPHA, ENHA, EFPC) and the EU Platform (Diet, Physical Activity and Health). We gather/disseminate information through NDAs, newsletters (EU Thematic Network DIETS), papers, reports, conferences and the website. Our stakeholders include dietetic associations, dietitians, citizens, key national ministries, higher education institutions, food industry, policy-makers and other health professionals. Our engagement wi
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Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services". In addition, the organisation has defined its guiding philosophy as "promoting the autonomy and self-determination of people with dementia and their carers throughout the course of the disease".
To achieve its mission and accomplish its vision, Alzheimer Europe has developed four objectives in its strategic plan (2011-2015) which was developed within the framework of its 2010 Operating Grant:
1. Making dementia a European priority through representing the interests of people with dementia, partnering with European institutions and jointly developing policy;
2. supporting policy with facts by improving the information exchange between AE, its members and other stakeholders, by setting up a European Dementia Observatory and by comparing national systems and identifying best practices;
3. basing our actions on ethical principles by understanding ethical principles and approaches, promoting a rights-based approach to dementia and finding common ground and building consensus on ethical issues;
4. building a stronger organisation by supporting and involving national associations, involving people with dementia and their carers, establishing AE conferences as unique networking opportunities, developing strategic partnerships, providing a sound governance structure and diversifying the organisation`s funding.
On the basis of these strategic objectives, Alzheimer Europe develops annual work plans outlining the priority areas and projects of the organisation.

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