Our mission is to improve the lives of porphyria patients by improving the diagnosis and treatment of these rare conditions. EPNET has been funded by the EU Commission (DG SANCO, PHEA programme). The objective is to provide an effective network of specialist porphyria centres in each country. EPNET contains 28 EU specialist centres that work together to develop an up-to-date approach to the management of patients and families with porphyria that conforms to uniform standards. EPNET focuses on: provision of information to patients (in their own languages) and healthcare professionals (HCPs); collection of information on safety of drugs; use of external quality assessment to develop quality standards for diagnosis and clinical advice; a web-based registry to collect data about the porphyrias to inform clinical practice and healthcare planning. Progress is communicated to partners through regular meetings and reports. Information on the porphyrias and drug selection is made available to patients, public health authorities and HCP’s at www.porphyria-europe.org; www.drugs-porphyria.org.
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Alzheimer Europe defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services".
To achieve its mission, Alzheimer Europe has defined the following six objectives in its strategic plan which covers the period of 2006-2010:
1. Representing the interests of people with dementia and their carers,
2. Involving and supporting national Alzheimer associations,
3. Improving the information exchange between AE, its members and other stakeholders,
4. Promoting best practice through the development of comparative surveys,
5. Jointly developing policy with its member organisations,
6. Developing strategic partnerships with other actors in the field.
On the basis of these strategic objectives, Alzheimer Europe develops annual work plans outlining the priority areas and projects of the organisation.
The development of a new strategic plan for 2011-2015 forms part of the 2010 operating grant.
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Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). AAE’s mission: unite civil society to work towards a more effective response to the HIV epidemic in Europe and Central Asia. We strive for better protection of human rights and universal access to prevention, treatment, care and support and work towards a reduction of health inequalities focussing on most at risk populations in Central and Eastern Europe and Central Asia.
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