Patients registries / Projects

First Programme of Community action in the field of public health (2003-2008)
European monitoring of excess mortality for public health action [EURO-MOMO]
To develop and operate a routine public health mortality monitoring system aimed at detecting and measuring, on a real-time basis, excess number of deaths related to influenza and other possible publi...
To develop and operate a routine public health mortality monitoring system aimed at detecting and measuring, on a real-time basis, excess number of deaths related to influenza and other possible public health threats across European countries.
Start date: 01/02/2008 - End date: 01/05/2011

Call: Responding To Health Threats Rapidly And In A Co-Ordinated Manner (Ht 2007)
Topic: Patients registries
First Programme of Community action in the field of public health (2003-2008)
European Registry of Quality Outcomes for Cataract and Refractive Surgery [EUREQUO]
The project will support improved treatment and standards of care patients who undergo cataract and refractive surgeries in Europe. This will be achieved through the development of a Europe-wide netwo...
The project will support improved treatment and standards of care patients who undergo cataract and refractive surgeries in Europe. This will be achieved through the development of a Europe-wide network (EUREQUO) of national registries reporting clinical outcomes in the field of cataract and refractive surgeries. The project aims to make a significant impact on the exchange of good practice between practitioners in relation to patient safety in this field.
Start date: 01/03/2008 - End date: 01/10/2011

Call: Health Information (Hi 2007)
Topic: Patients registries
First Programme of Community action in the field of public health (2003-2008)
Establishment of an European Network of Rare Bleeding Disorders [EN-RBD]
The general objective of this project is to set up a European network of treatment centres of rare bleeding disorders (RBDs), exploiting the potential of the existing database on RBDs called the Rare ...
The general objective of this project is to set up a European network of treatment centres of rare bleeding disorders (RBDs), exploiting the potential of the existing database on RBDs called the Rare Bleeding Disorders Database (RBDD) by extending its proven organisational capacity and experience in collecting pertinent data.
Start date: 01/04/2007 - End date: 01/04/2010

Call: Health Information (Hi 2006)
Topic: Patients registries
First Programme of Community action in the field of public health (2003-2008)
European Porphyria Network: providing better healthcare for patients and their families [EPNET]
The aim of the EPNET project is to set up a functional network of specialist porphyria centres, conforming to the agreed quality criteria and providing standardised information to patients and profess...
The aim of the EPNET project is to set up a functional network of specialist porphyria centres, conforming to the agreed quality criteria and providing standardised information to patients and professionals.
Start date: 01/04/2007 - End date: 01/04/2010

Call: Health Information (Hi 2006)
Topic: Patients registries
Second Programme of Community action in the Field of Health 2008-2013
Joint Action on Monitoring Injuries in Europe [JAMIE]
The objective of JAMIE is to have by the end of 2013 in the majority of MSs a common hospital based surveillance injury system in operation enabling EC and MSs to monitor injury risks. JAMIE will:
- r...
The objective of JAMIE is to have by the end of 2013 in the majority of MSs a common hospital based surveillance injury system in operation enabling EC and MSs to monitor injury risks. JAMIE will:
- refine the current methodology for collecting hospital based injury data with a view to allow data collection also in less resourced settings and to ensure that the quality of data will meet the EuroStat-quality requirements; and
- incorporate in 26 out of the eligible countries (EU31) into the European IDB monitoring system and into the IDB-exchange mechanism.

The Joint Action will make available national capacities and resources for applying a pro-active approach to Member States, by offering assistance: such as standardized trainings for national data administrators, twinning programmes, on-site consultations and country specific coaching for countries which still have to start or restart a system, continuous supervision, and joint monitoring actions levels of implementation in each MS.

Start date: 01/04/2011 - End date: 01/08/2014

Call: Promote Health (Hp-2010)
Topic: Patients registries