EPIDERM aims to acquire and disseminate knowledge on skin cancers (SC) relating to their occurrence, risk factors, treatments and costs of illness to develop prevention and risk reduction strategies and best practice recommendations. It also aims to assess health literacy on SC and to help promote it by improving knowledge and awareness on three levels: general population, health practitioners and political authorities.
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Build on the experience from national trials for paediatric Hodgkin`s lymphoma (PHL) experts from 12 EU countries decided on a common protocol to individualise PHL treatment. The aims are high cure rates and significant reduction of late effects (e.g. secondary cancer). Treatment decisions depend on exact staging and early response assessment using CT, MRI and PET. Due to limited experience with this rare disease in local hospitals, participating countries decided either to join a central reference system (10 countries), successfully working in Germany since 1990, or to built up own systems (France and Poland).
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The SEID project aims at developing a better understanding among involved countries on different intervention options for young polydrug users. The project will combine existing knowledge on prevention, care and therapy and social inclusion among young people with the experimentation of local key pilot actions in order to produce a transnational catalogue of intervention options.
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The general objective of the project is to improve the quality of antibiotic prescribing for children in Europe. The specific objectives include determining the variation in antibiotic prescribing for common childhood infections in the community and hospitals across Europe, compared to local guidelines. The project will also systematically compare rates of antimicrobial resistance. There has been a limited focus on education on antimicrobial resistance on pediatricians. The project will aim to kick start a new network of PID specialists working in close collaboration and building on the existing EU funded surveillance projects. ARPEC will use key opinion leaders within ESPID to try to develop the evidence base for the variation in antibiotic resistance and prescribing. This will then directly translate into long term educational programmes focussing on trainee pediatricians and formalise educational training packages in prudent antimicrobial prescribing.
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The objective of SHARE is to improve the quality of care of patients suffering from PRD (i.e. JIA, JDM, SLE, APS, vasculitis and scleroderma) by means of:
(I) Resolving the barriers between: (a) networks and projects, (b) PRD research teams, and (c) all actors involved in the itinerary from the conception of an idea or lead to the development of a new medical technology or drug and the treatment of patients;
(II) Improving a patients access to relevant data/information about his/her disease;
(III) Facilitating the exchange of ideas, results, data and best practices, and;
(IV) Facilitating the implementation of results in training programs of health care professionals.
Building on established networks (PReS/PRINTO), national registers and European projects, SHARE will have a considerable impact on the treatment and management of PRD by catalyzing progress in research, by harmonizing treatment, by improving the foothold of patients and by supporting regulatory and policy decisions.
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