Chronic Diseases / Projects

Second Programme of Community action in the Field of Health 2008-2013
European Patients' Forum [EPF_FY2012]
-Vision:
Patient-centred, high quality, equitable healthcare for all patients throughout the EU.
-Mission:
To be the collective patients` voice at EU level, manifesting the solidarity, power and unity...
-Vision:
Patient-centred, high quality, equitable healthcare for all patients throughout the EU.
-Mission:
To be the collective patients` voice at EU level, manifesting the solidarity, power and unity of the EU patients` movement,and provide a strong and united patients` voice to put patients at the centre of EU health policy and programmes.
-Core values/guiding principles as agreed in the Strategic Plan:
- We are patient-centred and right-based
- We combat discrimination on the grounds of illness and address health inequalities from the perspective of patients
- We advocate a holistic approach to healthcare issues that includes the social, economic,cultural, environmental and mental health agenda for patients, carers and families
- We foster the empowerment of patients, carers and their families by breaking down attitudinal barriers and prejudice regarding patients` place in society as equal citizens
- We consult and build consensus within our membership to address the EU policy issues that have an impact on the patient community
- We are an independent organisation, transparent in all our operations-financial, policy,communications
- We are an open and inclusive organisation and strive to ensure that our work also reflects the opinion of potentially marginalised and under-represented patients,carers and families
- We have a strong commitment to gender equality
Additional values informing our work are:
- We foster the meaningful involvement of patients through empowerment by breaking down attitudinal barriers regarding the place of patients in healthcare and society as equal citizens
- We encourage effective,inclusive and sustainable patient organisations throughout the EU
- We are committed to giving a voice to underrepresented patients, including young patients and reaching out to all ethnic and cultural patient groups
- With regard to ethical issues,EPF respects recognised European and International instruments protecting human rights.
Our vision and core values inform EPF`s policy and programme work, external communications and collaboration.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Chronic Diseases
Second Programme of Community action in the Field of Health 2008-2013
Stichting Aids Fonds - Soa Aids Nederland [SANL_FY2012]
Stichting Aids Fonds - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation involved in STI/HIV control and sexual health promotion. ...
Stichting Aids Fonds - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation involved in STI/HIV control and sexual health promotion.
AAE`s mission is to unite civil society to work towards a more effective response to the HIV epidemic in Europe and Central Asia. We strive for better protection of human rights and universal access to prevention, treatment, care and support. We work towards a reduction of health inequalities focussing on most at risk populations and the epidemic in Central and Eastern Europe and Central Asia.
As regional network of ICASO (International Council of AIDS Service Organizations), AAE is part of ICASO`s mission to mobilize and support diverse community organizations to build an effective global response to HIV and AIDS. This is done within a vision of a world where people living with and affected by HIV and AIDS can enjoy life free from stigma, discrimination, and persecution, and have universal access to prevention, treatment, care and support.
AAE`s core values: be accountable and hold others accountable; be transparent; be inclusive; put in practice the GIPA principle (greater involvement of people living with HIV); work from a human rights based approach; facilitate a networking and partnership culture; be cost-effective; make a difference.
Our mission is communicated through our website, in leaflets, works plans and annual reports.

Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Chronic Diseases
Second Programme of Community action in the Field of Health 2008-2013
European Council on Alcohol Rehabilitation Research and Education [Eurocare_FY2012]
Eurocare is unique in its role as the leading independent NGO working on alcohol policies in Europe.

Eurocare`s vision is a Europe where alcohol related harm is no longer one of the leading risk fact...
Eurocare is unique in its role as the leading independent NGO working on alcohol policies in Europe.

Eurocare`s vision is a Europe where alcohol related harm is no longer one of the leading risk factors for ill-health, early death, violence and disability, where innocent third parties no longer suffer from the drinking of others and where the EU and its Member States acknowledge the harm done by alcohol and implement effective and comprehensive policies to tackle it.

The mission of Eurocare is to raise awareness among decision makers of the harms caused by alcohol and to ensure that these are taken into consideration in all relevant EU policy discussions, as well as to promote the development and implementation of evidence based policies and at effectively preventing and reducing the burden brought in by alcohol.

To achieve its mission Eurocare seeks to; influence policy makers, establish collaboration with other organizations sharing our concerns, advocate effective and evidence based alcohol policies, monitor relevant policy developments, monitor marketing practices of the alcohol industry, disseminate information and knowledge through reports, position papers,web site and newsletter.

Our message in regards to alcohol consumption is that "less is better".

Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Chronic Diseases
Second Programme of Community action in the Field of Health 2008-2013
The European Network for Smoking Prevention [ENSP_FY2012]
ENSP is an international non-profit association, created in 1997 under Belgium law (ID 16377/97), which aims to reduce tobacco consumption and develop a common strategy amongst organisations active in...
ENSP is an international non-profit association, created in 1997 under Belgium law (ID 16377/97), which aims to reduce tobacco consumption and develop a common strategy amongst organisations active in smoking prevention and tobacco control throughout Europe, by sharing information and experience, through coordinated activities and projects, by creating synergies among public health advocates thus increasing their capacity to direct their actions more effectively. ENSP acts as the lynchpin for members creating a central, cohesive force for the European tobacco control movement.

Our vision is a future where our fellow Europeans will not suffer ill health and early death caused by tobacco. We want children to be able to grow up without being targeted with messages that seek to lure them into a lifetime of addiction. We want all Europeans to be able to breathe clean air unpolluted by tobacco smoke. We aim to make our continent completely smoke-free by 2040.

As we communicate more freely and cross country borders more frequently, we are aware that our countries do not stand alone: tobacco control is at different stages in all European countries, so ENSP undertakes to use the most effective evidence in policy and practice to work together towards a common goal. Members can use past experience in other countries and adapt such experience to their needs by joining the ENSP network. ENSP members collaborate to agree on a common policy and speak in one voice, thus strengthening the European tobacco control effort and reinforcing European public health messages.

To eliminate the use of tobacco products, ENSP believes that all European countries need to implement comprehensive tobacco control strategies, including high taxes, comprehensive bans on direct and indirect advertising of tobacco, smoking bans in public and workplaces (including the hospitality sector), introduce strong text and pictorial warnings on tobacco packages and move towards standardised packaging.

Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Chronic Diseases
Second Programme of Community action in the Field of Health 2008-2013
European Porphyria Network: providing better healthcare for patients and their families [APHP-EPNET_FY2012]
Our mission is to improve the lives of porphyria patients by improving the diagnosis and treatment of these rare conditions. EPNET has been funded by the EU Commission (DG SANCO, PHEA programme)since ...
Our mission is to improve the lives of porphyria patients by improving the diagnosis and treatment of these rare conditions. EPNET has been funded by the EU Commission (DG SANCO, PHEA programme)since 2007. The objective is to establish an effective network of specialist porphyria centres throughout the EU. Currently, EPNET consists of 28 EU specialist centres from 17 European countries that work together to develop an up-to-date approach to the management of patients and families with porphyria that conforms to uniform standards. We also have members from Australia, New Zealand, South Africa and the USA.
Evidence from the last years shows that this network and its activities have a positive effect on the quality of diagnosis, number of patients diagnosed and treatment choices (shown through the collection of data, enquiries to the drug database and external quality scheme). However, porphyria centres and/or clinical experts are still not present in all EU countries; therefore the care is not equal in all member states. An objective for 2012 will be to work with national plans, the laboratory network and the cross boundary directive to find a method to reach out to patients in countries currently outside EPNET e.g. Bulgaria, Greece, Portugal, Croatia and others.
EPNET focuses on: provision of information to patients (in their own languages) and healthcare professionals (HCPs); use of external quality assessment to develop quality standards for diagnosis and clinical advice; a web-based registry to collect data about the porphyrias to inform clinical practice and healthcare planning; dissemination of information on safety of drugs. Progress is communicated to partners through regular meetings and reports. Information on the porphyrias and drug selection is made available to patients, public health authorities and HCP`s at www.porphyria-europe.org; www.drugs-porphyria.org.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Chronic Diseases