Patients rights / Projects

Second Programme of Community action in the Field of Health 2008-2013
European Organisation for Rare Diseases [EURORDIS_FY2012]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

E...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

- Empowering RD patient groups
- Advocating RD as a public health priority
- Raising public awareness on RD
- Improving access to information, treatment, care and support for PLWRD
- Improving quality of life
- Encouraging good practices in relation to these issues
- Promoting scientific and clinical research on RD
- Promoting the development of treatments and drugs for people with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD (EC Communication and Council Recommendations), in the EU Committee of Experts on RD and in the elaboration of National Plans or Strategies on RD.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
Health Action International [HAI_FY2012]
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals. HAI`s mission and goa...
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals. HAI`s mission and goals follow the overarching global work programme set every five years. HAI Europe devises plans and strategies to inform medicines` policy in Europe and acts as a regional coordinating centre.

HAI`s mission is:
- To increase access to Essential Medicines: Ensuring that medicines meeting priority healthcare needs are available, accessible and affordable to all;

- To improve the Rational Use of Medicines: Ensuring that all licensed medicines meet real medical needs, have therapeutic advantages, are acceptably safe, offer value for money and are appropriately prescribed, in tailored doses, for an adequate time at the lowest cost to citizens and their community;

- To promote the participation of citizens in medicines policy: Encouraging and supporting the participation of patients and consumers in decisions that will affect their health and well-being, whilst advocating for the highest levels of transparency, independence and accountability in all aspects of medicines policy.

HAI Europe monitors and encourages EU policy-making around these three thematic priorities. HAI Europe works by implementing innovative methodologies that generate key data, develop and publish key publications and commentary as well as promote knowledge exchange on the impact of medicines policy on public health. The paucity of coherent medicines policies in Europe has driven HAI`s unique focus over the last 30 years and continues to be at the centre of HAI`s research, advocacy, capacity building and expertise, and as a result, has established HAI`s reputation as an authority on pharmaceutical policy issues.

Vision: Poverty and social injustice represent the greatest barriers to sustainable health and development and HAI works for a just and equitable society where people can participate in decisions affecting their health and well being, including the allocation of resources.

Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
Alzheimer Europe [AE_FY2012]
Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services"....
Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services". In addition, the organisation has defined its guiding philosophy as "promoting the autonomy and self-determination of people with dementia and their carers throughout the course of the disease".
To achieve its mission and accomplish its vision, Alzheimer Europe has developed four objectives in its strategic plan (2011-2015) which was developed within the framework of its 2010 Operating Grant:
1. Making dementia a European priority through representing the interests of people with dementia, partnering with European institutions and jointly developing policy;
2. supporting policy with facts by improving the information exchange between AE, its members and other stakeholders, by setting up a European Dementia Observatory and by comparing national systems and identifying best practices;
3. basing our actions on ethical principles by understanding ethical principles and approaches, promoting a rights-based approach to dementia and finding common ground and building consensus on ethical issues;
4. building a stronger organisation by supporting and involving national associations, involving people with dementia and their carers, establishing AE conferences as unique networking opportunities, developing strategic partnerships, providing a sound governance structure and diversifying the organisation`s funding.
On the basis of these strategic objectives, Alzheimer Europe develops annual work plans outlining the priority areas and projects of the organisation.

Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
I.A.A.S._FY2014_FY2013 [I.A.A.S._FY2014]
The International Association for Ambulatory Surgery (IAAS) was founded in 1996 and is a registered charity in Belgium EU. The IAAS is the only non-profit umbrella organization based on membership of ...
The International Association for Ambulatory Surgery (IAAS) was founded in 1996 and is a registered charity in Belgium EU. The IAAS is the only non-profit umbrella organization based on membership of national ambulatory surgery associations from countries around the world, and independent medical associations. Over half of the EU member countries are represented in the IAAS.
“Day Surgery: Making it Happen” represents the overall vision of the IAAS – working together, through education, consultation and communication, with national societies, governmental organizations and service providers with the goal of furthering the understanding of the benefits and advantages of day surgery as well as the barriers to its full development.
The mission of the IAAS is to promote the worldwide development and growth of high quality ambulatory surgery worldwide. Day surgery has proven itself to be a high-quality, safe and cost-effective approach to surgical health care. In this light, IAAS members work together to carry out this mission free of partisan spirit, polemics and prejudice, and are committed to the values of solidarity and equity of access to healthcare.
Start date: 01/01/2013 - End date: 01/01/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2013)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
I.A.A.S._FY2013 [I.A.A.S._FY2013]
The International Association for Ambulatory Surgery (IAAS) was founded in 1996 and is a registered charity in Belgium EU. The IAAS is the only non-profit umbrella organization based on membership of ...
The International Association for Ambulatory Surgery (IAAS) was founded in 1996 and is a registered charity in Belgium EU. The IAAS is the only non-profit umbrella organization based on membership of national ambulatory surgery associations from countries around the world, and independent medical associations. Over half of the EU member countries are represented in the IAAS.
Day Surgery: Making it Happen represents the overall vision of the IAAS working together, through education, consultation and communication, with national societies, governmental organizations and service providers with the goal of furthering the understanding of the benefits and advantages of day surgery as well as the barriers to its full development.
The mission of the IAAS is to promote the worldwide development and growth of high quality ambulatory surgery worldwide. Day surgery has proven itself to be a high-quality, safe and cost-effective approach to surgical health care. In this light, IAAS members work together to carry out this mission free of partisan spirit, polemics and prejudice, and are committed to the values of solidarity and equity of access to healthcare.

Start date: 01/01/2013 - End date: 01/01/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2012)
Topic: Patients rights