Patients rights / Projects

Second Programme of Community action in the Field of Health 2008-2013
EPF_FY2013 [EPF_FY2013]
Our mission is to be the collective patients voice at EU level, manifesting the solidarity, power and unity of the EU patients movement, and provide a strong and united patients voice to put patients ...
Our mission is to be the collective patients voice at EU level, manifesting the solidarity, power and unity of the EU patients movement, and provide a strong and united patients voice to put patients at the centre of EU health policy and programmes.
Our vision is patient-centred, high quality, equitable healthcare for all patients throughout the EU.
Core values/guiding principles as agreed in the Strategic Plan:
-We are patient-centred and right-based
-We combat discrimination on the grounds of illness and address health inequalities from the perspective of patients
-We advocate a holistic approach to healthcare issues that includes the social, economic, cultural, environmental and mental health agenda for patients, carers and families
-We foster the empowerment of patients, carers and their families by breaking down attitudinal barriers and prejudice regarding patients place in society as equal citizens
-We consult and build consensus within our membership to address the EU policy issues that have an impact on the patient community
-We are an independent organisation, transparent in all our operations-financial, policy, communications
-We are an open and inclusive organisation and strive to ensure that our work also reflects the opinion of potentially marginalised and under-represented patients, carers and families
-We have a strong commitment to gender equality
-We encourage effective, inclusive and sustainable patient organisations throughout the EU
-We are committed to giving a voice to underrepresented patients, including young patients and reaching out to all ethnic and cultural patient groups
-With regard to ethical issues, EPF respects recognised European and International instruments protecting human rights.
These core values lie at the heart of our organisation - they define who we are, how we work and what we stand for. They not only inform our advocacy/campaign and programme work, but also guide the way we build alliances and partnerships. Our communication strategy ensures that these values are effectively shared with the patient community
Start date: 01/01/2013 - End date: 01/01/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2012)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
HAI_FY2013 [HAI_FY2013]
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals. HAI`s mission and goa...
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals. HAI`s mission and goals follow an overarching global work programme set every five years. HAI Europe devises plans and strategies to inform medicines` policy in Europe and acts as a regional coordinating centre.

HAI`s mission is:

- To increase access to essential medicines: Ensuring that medicines meeting priority healthcare needs are available, accessible and affordable to all;

- To improve the rational use of medicines: Ensuring that all licensed medicines meet real medical needs, have therapeutic advantages, are acceptably safe, offer value for money and are appropriately prescribed, in tailored doses, for an adequate time at the lowest cost to citizens and their community;

- To promote the participation of citizens in medicines policy: Encouraging and supporting the participation of patients and consumers in decisions that will affect their health and well-being, whilst advocating for the highest levels of transparency, independence and accountability in all aspects of medicines policy.

HAI Europe monitors and encourages EU policy-making around these three thematic priorities. HAI Europe works by implementing innovative methodologies that generate key data, develop and publish key publications and commentary as well as promote knowledge exchange on the impact of medicines policy on public health. The paucity of coherent medicines policies in Europe has driven HAI`s unique focus over the last 30 years and continues to be at the centre of HAI`s research, advocacy, capacity building and expertise, and as a result, has established HAI`s reputation as an authority on pharmaceutical policy issues.

HAI`s vision is:

Poverty and social injustice represent the greatest barriers to sustainable health and development and HAI works for a just and equitable society where people can participate in decisions affecting their health and well being, including the allocation of resources.

Start date: 01/01/2013 - End date: 01/01/2014

Call: Promote Health (Hp-2012)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
AE_FY2013 [AE_FY2013]
Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services"....
Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services". In addition, the organisation has defined its guiding philosophy as "promoting the autonomy and self-determination of people with dementia and their carers throughout the course of the disease".
To achieve its mission and accomplish its vision, Alzheimer Europe has developed four objectives in its strategic plan (2011-2015) which was developed within the framework of its 2010 Operating Grant:
1. Making dementia a European priority through representing the interests of people with dementia, partnering with European institutions and jointly developing policy;
2. supporting policy with facts by improving the information exchange between AE, its members and other stakeholders, by setting up a European Dementia Observatory and by comparing national systems and identifying best practices;
3. basing our actions on ethical principles by understanding ethical principles and approaches, promoting a rights-based approach to dementia and finding common ground and building consensus on ethical issues;
4. building a stronger organisation by supporting and involving national associations, involving people with dementia and their carers, establishing AE conferences as unique networking opportunities, developing strategic partnerships, providing a sound governance structure and diversifying the organisation`s funding.
On the basis of these strategic objectives, Alzheimer Europe develops annual work plans outlining the priority areas and projects of the organisation.
Start date: 01/01/2013 - End date: 01/01/2014

Call: Promote Health (Hp-2012)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
SANL_FY2013 [SANL_FY2013]
Stichting Aids Fonds - STOP AIDS NOW - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation that aims to prevent sexually transmitted...
Stichting Aids Fonds - STOP AIDS NOW - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation that aims to prevent sexually transmitted infections, including HIV, and improve the quality of STI control in the Netherlands. The operating grant is requested for the core work programme of AAE.
AAE`s mission is to unite civil society to work towards a more effective response to the HIV epidemic in Europe and Central Asia. We strive for better protection of human rights and universal access to prevention, treatment, care and support. We work towards a reduction of health inequalities focussing on most at risk populations and the epidemic in Central and Eastern Europe and Central Asia.
We envision a world where people living with and affected by HIV and AIDS can enjoy life free from stigma, discrimination, and persecution, and have universal access to prevention, treatment, care and support.
AAE`s policy, advocacy and linking and learning work is shaped by a set of core values: be accountable and hold others accountable; be transparent; be inclusive; put in practice the GIPA principle (greater involvement of people living with HIV); work from a human rights based approach; facilitate a networking and partnership culture; be cost-effective; and make a difference.
Our mission is communicated through our website, in our promotion leaflet, work plans and annual reports, among others.
Start date: 01/01/2013 - End date: 01/01/2014

Call: Promote Health (Hp-2012)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
European Conference on Rare Diseases & Orphan Products 2014 Berlin [ECRD 2014]
The objectives of the European Conference on Rare Diseases & Orphan Products are:

- To disseminate the most up-to-date health information related to the rare disease environment to all relevant stake...
The objectives of the European Conference on Rare Diseases & Orphan Products are:

- To disseminate the most up-to-date health information related to the rare disease environment to all relevant stakeholders (patients and patients’ representatives, academics, health care professionals, industry and policy makers);

- To demonstrate the importance of EU actions in the field of rare diseases and review progress made to date;

- To elaborate strategies and mechanisms for developing further exchange of information between stakeholders: people living with rare diseases, volunteers, health professionals, policy makers, researchers and industry at national and EU levels;

- To exchange knowledge and best practices on all relevant health issues related to the rare disease environment;

- To sustain efforts for rare disease policies at both the European and the national level;

- To stimulate dialogue on policies for rare diseases in some of the Member States having recently joined the EU;

- To present specific, achievable objectives at both European and national levels in order to reduce health inequalities for rare disease patients.


Start date: 01/01/2014 - End date: 01/09/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2013)
Topic: Patients rights