Guidelines / Projects

3rd Health Programme (2014-2020)
European Rare Kidney Diseases Reference Network [ERKNet]
The European Reference Network for Rare Kidney Diseases (ERKNet) will offer highly specalised healthcare to children and adults suffering from congenital and acquired glomerulopathies, tubulopathies, ...
The European Reference Network for Rare Kidney Diseases (ERKNet) will offer highly specalised healthcare to children and adults suffering from congenital and acquired glomerulopathies, tubulopathies, metabolic and stone forming nephropathies, thrombotic microangiopathies, renal ciliopathies and other anomalies of kidney and urinary tract development.
The Network comprises almost 40 centres in 12 European countries with specific expertise documented by large patient numbers (collectively more than 45,000), state-of-art diagnostic services and therapeutic equipment and professional multidisciplinary care.
The Members will share best practices by offering physical and virtual cross border consultation, series of educational workshops and webinars, e-learning modules on focused rare kidney disease topics, short-term training opportunities, and by endorsing existing and developing new clinical practice guidelines and recommendations wherever needed. In collaboration with the patient organisations, the Network will collect informational materials on all rare kidney diseases and their treatments and make the documents available in multiple languages to affected families throughout Europe.
Furthermore, ERKNet will strive to harmonize and further optimize patient care across the Member centres by regularly monitoring and benchmarking guideline adherence, disease-specific performance and outcomes measures, as well as patient safety and satisfaction.
Another important goal of the Network will be to actively support clinical research into risk factors and biomarkers of early and severe disease phenotypes, and provide a platform for innovative interventional clinical trials aimed at improving or stabilizing kidney functions and preventing progressive renal failure in adults and children with rare kidney diseases.
Start date: 01/03/2017 - End date: 28/02/2018

Call: EUROPEAN REFERENCE NETWORKS SPECIFIC GRANT AGREEMENTS COVERING YEAR 2017
Topic: Guidelines
3rd Health Programme (2014-2020)
European Rare Kidney Diseases Reference Network [ERKNet]
The European Reference Network for Rare Kidney Diseases (ERKNet) will offer highly specalised healthcare to children and
adults suffering from congenital and acquired glomerulopathies, tubulopathies, ...
The European Reference Network for Rare Kidney Diseases (ERKNet) will offer highly specalised healthcare to children and
adults suffering from congenital and acquired glomerulopathies, tubulopathies, metabolic and stone forming nephropathies,
thrombotic microangiopathies, renal ciliopathies and other anomalies of kidney and urinary tract development.
The Network comprises almost 40 centres in 12 European countries with specific expertise documented by large patient
numbers (collectively more than 45,000), state-of-art diagnostic services and therapeutic equipment and professional
multidisciplinary care.
The Members will share best practices by offering physical and virtual cross border consultation, series of educational
workshops and webinars, e-learning modules on focused rare kidney disease topics, short-term training opportunities, and
by endorsing existing and developing new clinical practice guidelines and recommendations wherever needed. In
collaboration with the patient organisations, the Network will collect informational materials on all rare kidney diseases and
their treatments and make the documents available in multiple languages to affected families throughout Europe.
Furthermore, ERKNet will strive to harmonize and further optimize patient care across the Member centres by regularly
monitoring and benchmarking guideline adherence, disease-specific performance and outcomes measures, as well as
patient safety and satisfaction.
Another important goal of the Network will be to actively support clinical research into risk factors and biomarkers of early
and severe disease phenotypes, and provide a platform for innovative interventional clinical trials aimed at improving or
stabilizing kidney functions and preventing progressive renal failure in adults and children with rare kidney diseases.
Start date: 01/03/2018 - End date: 28/02/2019

Call: EUROPEAN REFERENCE NETWORKS SPECIFIC GRANT AGREEMENTS COVERING YEAR 2018
Topic: Guidelines
3rd Health Programme (2014-2020)
European Rare Kidney Diseases Reference Network [ERKNet]
The European Reference Network for Rare Kidney Diseases (ERKNet) will offer highly specalised healthcare to children and adults suffering from congenital and acquired glomerulopathies, tubulopathies, ...
The European Reference Network for Rare Kidney Diseases (ERKNet) will offer highly specalised healthcare to children and adults suffering from congenital and acquired glomerulopathies, tubulopathies, metabolic and stone forming nephropathies, thrombotic microangiopathies, renal ciliopathies and other anomalies of kidney and urinary tract development. The Network comprises almost 40 centres in 12 European countries with specific expertise documented by large patient numbers (collectively more than 45,000), state-of-art diagnostic services and therapeutic equipment and professional multidisciplinary care. The Members will share best practices by offering physical and virtual cross border consultation, series of educational workshops and webinars, e-learning modules on focused rare kidney disease topics, short-term training opportunities, and by endorsing existing and developing new clinical practice guidelines and recommendations wherever needed. In collaboration with the patient organisations, the Network will collect informational materials on all rare kidney diseases and their treatments and make the documents available in multiple languages to affected families throughout Europe. Furthermore, ERKNet will strive to harmonize and further optimize patient care across the Member centres by regularly monitoring and benchmarking guideline adherence, disease-specific performance and outcomes measures, as well as patient safety and satisfaction. Another important goal of the Network will be to actively support clinical research into risk factors and biomarkers of early and severe disease phenotypes, and provide a platform for innovative interventional clinical trials aimed at improving or stabilizing kidney functions and preventing progressive renal failure in adults and children with rare kidney diseases.
Start date: 01/03/2019 - End date: 28/02/2022

Call: Multiannual Grant Agreements for European Reference Networks
Topic: Guidelines
3rd Health Programme (2014-2020)
A Roadmap OUT of mEdical deserts into supportive Health WorkForce initiatives and policies [ROUTE-HWF]
ROUTE-HWF aims to reduce inequalities in access to healthcare among countries and regions in Europe by supporting EU Member States in designing and implementing their policies related to regional medi...
ROUTE-HWF aims to reduce inequalities in access to healthcare among countries and regions in Europe by supporting EU Member States in designing and implementing their policies related to regional medical deserts. It will do so by: (1) providing a definition and taxonomy of the concept of medical deserts, (2) developing guidelines on how EU Member States can monitor and measure medical deserts (as defined and categorized in the developed taxonomy) at national and subnational levels, (3) providing in-depth insights on factors driving “desertification” and of HWF policy responses and approaches to medical deserts, (4) providing an optimal mix of HWF policy responses and approaches to medical deserts per category of the taxonomy on medical deserts, and (5) developing a roadmap which will support EU Member States in designing and implementing their health workforce policies, actions and initiatives related to medical deserts.

Divided over 3 horizontal WPs and 5 core WPs, the following methods will be used to achieve these aims: a literature study, a country survey among 33 European countries, a database search, five national workshops (NL, FI, ES, PL, HR) with 10 participants each, six in-depth case studies, and a 1,5 day consensus building workshop with 66 participants from 33 countries.

The elements of the ROUTE-HWF roadmap will be strongly rooted in practice and support public authorities and health professionals at national and subnational levels in (a) better understanding the characteristics of medical deserts in their country or region, (b) better monitoring and measuring medical deserts, including the effects of policy measures, and (c) improving the design and implementation of policies to move out of medical deserts in their country or region, by providing a rationale for a mix of policy measures, taking into account relevant contextual factors (including possible legal and other barriers).

Start date: 01/03/2021 - End date: 29/02/2024

Call: Call for Proposals for Project Grants under the Annual Work Programme 2020 of the 3rd EU Health Programme
Topic: Guidelines
3rd Health Programme (2014-2020)
Frailty management Optimisation through EIP AHA Commitments and Utilisation of Stakeholders input [FOCUS]
Our purpose is to critically reduce the burden of frailty in Europe by assisting those partners within the European Innovation Partnership for Active Healthy Ageing (EIPAHA) with commitments focusing ...
Our purpose is to critically reduce the burden of frailty in Europe by assisting those partners within the European Innovation Partnership for Active Healthy Ageing (EIPAHA) with commitments focusing on early diagnosis/screening and/or management of frailty to achieve scalability. We have selected EIPAHA because it constitutes a critical instrument for the EU and because it composes the widest representation of initiatives about frailty in Europe.
Our project offers both a service and a network. The service consists of evidence-based guidelines to critically help the selected group of partners to satisfactorily achieve their goals. The network intends to prolong the service in the long term.
To achieve that purpose (WP4) we will define the roadmap, in that we will i) describe the state of art (review of the scientific literature), ii) get a picture of the status of the affected commitments within EIPAHA (barriers, enablers, etc.), and iii) obtain information of the needs of stakeholders. With this real-world landscape in hand, WP5 will define indicators and use a scientifically sound method, comparative effectiveness research, to draw conclusions regarding the most adequate and customized approach to assist commitments in achieving success. Inequalities, cultural conditions or cross-border issues will be considered as representative of the diversity in Europe. Guidelines and toolkits will be issued with the perspective of sustainability. WP6 will constitute the “Platform for Knowledge Exchange” (PKE), which will both facilitate and perpetuate exchange between partners and stakeholders to achieve synergies and guide progression. PKE will act as a repository and as an instrument for dissemination too. WP7 will be a practical test to verify the usability and performance of guidelines in real EIPAHA commitments.
Relevance derives from the wide prevalence of frailty in Europe, consistently the focus throughout the work programme.

Start date: 01/05/2015 - End date: 30/04/2018

Call: Call for Proposals for Projects 2014
Topic: Guidelines