Training / Projects

3rd Health Programme (2014-2020)
ERN on Rare and Undiagnosed Skin Disorders [ERN-Skin]
Situation
The ERN-Skin aims to enhance high-level patient management for rare complex and undiagnosed skin disorders, by improving the: quality, safety, access to highly specialized healthcare. These...
Situation
The ERN-Skin aims to enhance high-level patient management for rare complex and undiagnosed skin disorders, by improving the: quality, safety, access to highly specialized healthcare. These diseases share: frequent misdiagnosis; lack of training of paramedics; frequent systemic involvement; poor recognition as a handicap; poor social integration.
Objectives
1.Better exchange of expertise; 2.Improved healthcare organization by pooling the resources; 3.Update/ develop guidelines in cooperation with overlapping ERNs; 4.Improved training of caregivers; 5.Patient/family therapeutic education; 6.Widespread general public information and recognition of the disease as a handicap, 7.Deep phenotyping for a common scientific language; 8.Development of an e-health platform allowing telemedicine and registries (research); 9.Comprehensive socio-economic study
Methods
1.Governance thought to ensure maximum geographical and target groups representativity and outreach across the EU; 2.Sub-thematic groups (specific clinical outcomes) and transversal groups (deep phenotyping, e-health& registries, training, common clinical outcomes); 3.Theoretical and practical courses for specialists and paramedics across the network and other ERNs covering different same symptoms; 4.Set up of a Patient Representative Council, representing all patient groups; 5.Communication and information: dissemination of Minutes, Reports in/outside the network; development of tools (website, newsletters, etc…); periodic meetings; 6.Support of European scientific societies
3rd HP relevance
ERN-Skin will facilitate access to better and safer healthcare for EU citizens by identifying centers with the necessary expertise and resources to treat rare diseases with skin involvement, as well as by sharing knowledge for an improved healthcare offer. ERN-Skin has a strong focus on developing innovative e-health tools for HCPs, thus facilitating cross-border access to expertise for effective patient management
Start date: 06/03/2017 - End date: 05/03/2022

Call: European Reference Networks
Topic: Training
3rd Health Programme (2014-2020)
OBesity Training And INformation Services for Europe, phase 2 [OBTAINS-E2]
OBTAINS-E2 (OBesity Training And INformation Services for Europe, phase 2) consists of three actions specifically serving our European members and the wider European population. The first action devel...
OBTAINS-E2 (OBesity Training And INformation Services for Europe, phase 2) consists of three actions specifically serving our European members and the wider European population. The first action develops and exploits our on-line distance learning opportunity for health professionals to gain a Specialist Certification in Obesity Professional Education (SCOPE). Course modules are accredited with Continuing Professional Development (CPD) points for professional development.

The second action develops our data resources to provide freely available graphs and tables to download, along with interactive maps providing recent estimates of obesity prevalence; policy maps showing national policy development in map format; and intervention maps showing community-level interventions, and available information on their target groups, costs, duration and impact.

The third action develops support for policy making by (i) running Policy Laboratories which are meetings of key researchers, leading non-governmental and professional organisations, and policy officials in relevant departments; (ii) publishing Policy Briefings as a freely available resource; and (iii) building a Policy Repository including the research which underlies the policies, examples of their different implementation, case studies and advocacy materials, and where available the evidence of their effectiveness and cost-effectiveness.

Start date: 15/05/2018 - End date: 14/05/2022

Call: Operating grants 2018-2021
Topic: Training
3rd Health Programme (2014-2020)
Market surveillance of medical devices [JAMS]
This Joint Action aims to reinforce market surveillance between Member States. Best practice, training, knowledge and resource will be shared to increase public health protection in the medical device...
This Joint Action aims to reinforce market surveillance between Member States. Best practice, training, knowledge and resource will be shared to increase public health protection in the medical devices sector. A key aim is to improve coordination and help lower-resourced Member States develop skills and capacity in the market surveillance network. It will help to ensure consistent and proportionate approach across all Member States in manufacturer inspections and clinical process and resource development.

Methods will be developed as follows:
1. Manufacturer inspections:
• Develop methods, agreed tools and guidance’s for a joint, consistent and proactive approach
• Establish specific inspection scopes and objectives to complement those conducted by conformity assessment bodies
• Develop different approaches and focus to manufacturer inspections
• Develop and deliver collaborating mechanisms designed to maximize the efficiency and effectiveness of resource deployment
• Develop an inspector training course to provide inspectors with basic skills and establish an inspectors expert group for ongoing collaborative approaches
2. Clinical process and resource development:
• Establish communication platforms and protocols
• Establish current practices and identify development and/or training needs and evaluation of clinical data by authorities
• Identify and prioritise medical devices which require development of common specifications to define clinical criteria for safety and performance.

In harmonising the European market surveillance system detection and reduction in the occurrence of safety issues will lead to increased public health protection by ensuring that medical devices conform especially to the requirements relating to safety and performance.


Start date: 17/10/2016 - End date: 16/01/2020

Call: Health Programme Adhoc Call for invited (named) beneficiaries
Topic: Training