EUNetPaS seeks to establish an umbrella network to improve cooperation among Member States in the field of patient safety, particular with respect to culture, reporting and learning systems, and education, and thus avoid overlap and duplication of efforts.




This proposal lays out the Work Programme for 2017 within the contents of the Multiannual Work Plan for the European Reference Network for Craniofacial Anomalies and ENT disorders (ERN CRANIO). ERN CRANIO involves teams from 29 European hospitals (10 Member States) that provide care, education, teaching, research and management of rare craniofacial anomalies, cleft lip/palate and ENT disorders. Our vision is that the best multidisciplinary initial care for all those with craniofacial anomalies and ENT disorders is not a privilege to be purchased but a moral right secured for all European patients.
Our MISSION is to consistently and persistently strive towards achieving our vision through:
1. Establishment and management of a steady referral network for patients with craniofacial anomalies and ENT disorders throughout Europe; 2. Improvement of the quality of care, by enhancing diagnosis, treatment and follow-up of the patients with rare craniofacial anomalies and ENT disorders; 3. Minimization of the deviation from our operational standards and sharing best practices through suitable quality improvement initiatives, while monitoring their effectiveness using measures and indicators; 4. Stimulating innovation through multicentre research projects on (genetic) causes, pathophysiology, and associated problems, and introduction of eHealth; 5. Supporting the continuous learning and development of all our members by providing high quality educational and training opportunities to medical, nursing and other healthcare professionals; 6. Disseminating gained knowledge, making it available to all stakeholders.

In Year 1, ERN CRANIO will focus on collecting and analysing the available data on diagnoses, treatment, follow-up programmes, education and eHealth. In addition, the aim is to further expand the network in the first year by including relevant partners and experts. The results of the first year will set the agenda for subsequent years.


The SPIM EU project aims at contributing to the reduction of cardio-metabolic morbidity and mortality in EU Member States by establishing the feasibility of implementing innovative selective prevention actions in primary care. In addition, the SPIM EU project will provide a toolbox for tailoring selective prevention actions in all EU Member States. The evidence based guideline of the Dutch College of General Practitioners represents an innovative approach for efficiently implementing selective prevention by a stepwise identification process of persons at high risk in the general population. However, successful implementation of this approach in EU Member States with different health care systems calls for tailoring of this action.The SPIM EU project includes five Work Packages (WP4-WP8), in addition to three horizontal Work Packages. WP4 includes the mapping of existing selective prevention programs in all EU Member States, and their strengths and weaknesses. In WP5 a systematic literature review will be conducted to summarize the knowledge from the literature about facilitating and hampering factors in implementing selective prevention programs and to identify determinants of their uptake and compliance. WP6 includes a survey among primary health care professionals and a sample of the general population in five EU Member States [SWE, DNK, NLD, CZE, GRE] to gain more insight into the task perceptions and attitudes towards selective prevention actions. In WP7 the results of WP4-WP6 will be collated and synthesized into tailored designs for implementing selective prevention actions (inspired by the Dutch guideline) in the five fore-mentioned EU Member States with the aim to test their feasibility. The feasibility tests are the core element of WP8. This will result in a toolbox of measures to tailor the implementation of selective prevention actions in all EU Member States taking their respective social, cultural, political and health care system contexts into account


This is the application for the ERN on Rare craniofacial anomalies and ENT disorders.

24 experts centers from 10 countries will join in this project, focusing on three major workstreams:
1. Craniofacial anomalies
2. Cleft lip/palate and odontologic disorders
3. ENT disorders

Aim is to make high level quality of care for craniofacial anomalies and ENT disorders available to all European citizens. This will be achieved by upgrading the service level for specific conditions provided by the ERN members, and by establishing craniofacial centers in countries that currently lack this care. The work group will incorporate professionals, relevant scientific societies and representatives from patient's societies.
The workplan involves assessment of available guidelines, develop missing ones, share experiences with teaching and training and making them available for those that request it, support travelling of the professionals with high level expertise to help out teams that lack this expertise, promote colaboration with regard to research. Where possible, data will be collected in a uniform way (mainly based on the principle of the ICHOM consortium) to enable benchmarking and promote implication of best practice at all centers. All knowledge will be shared at national, European and worldwide levels.
