Interest groups / Projects

Second Programme of Community action in the Field of Health 2008-2013
Chain of Trust–Understanding patients and health professionals’ perspective on Telehealth to build confidence and acceptance [Chain of Trust]
The paramount objective of the "Chain of Trust" project is to advance the empowerment of patients, health professionals and national health authorities across the EU in their understanding and effecti...
The paramount objective of the "Chain of Trust" project is to advance the empowerment of patients, health professionals and national health authorities across the EU in their understanding and effective use of telehealth services in an effort to actively contribute to the vision of high quality, patient-centred, equitable healthcare for all EU patients.
Through a series of focused and well defined actions the project will strengthen significantly the levels of awareness and trust for all key stakeholders.

To this end two specific objectives have been identified:

1. Knowledge gathering. To improve available knowledge of the specific views – needs, perceptions on the added value and concerns - among patients and health professionals with regard to telehealth services;

2. Rasing awareness and understanding. To increase awareness and understanding of users` perspective on telehealth amongst patients` and health professionals` organisations and health authorities at European and Member State level.
Start date: 01/01/2011 - End date: 01/01/2013

Call: Improve Citizen''S Health Security (Hs-2009)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
The European Multiple Sclerosis Platform [EMSP_FY2012]
Founded in 1989, EMSP is the umbrella organisation representing 38 national MS societies from 34 European countries. EMSP represents their interests at European level and works collectively with its m...
Founded in 1989, EMSP is the umbrella organisation representing 38 national MS societies from 34 European countries. EMSP represents their interests at European level and works collectively with its members to achieve our goals of high quality equitable treatment and support for all people with Multiple Sclerosis (PwMS) throughout Europe.

EMSP vision is to move from high quality treatment and support for all PwMS in Europe to a world without MS.

EMSP`s mission is to ensure the development and the implementation of high quality standards of treatment and support for PwMS, their families and their carers in all EU member states, to allow them to lead their life independently and to recognise them as equal members of the society.

EMSP work priorities to achieve this mission are to:
- influence EU institutions and other decision-making bodies to improve the quality of life of PwMS;
- network with other European organisations which share of vision of truly patient centred approach;
- provide MS member organisations with information on relevant EU draft legislation and how we can influence it, and evidence - based projects that will contribute to their work;
- develop and promote recommendations for improved medical treatment and rehabilitation to be implemented in the EU member states and other countries;
- encourage coordinated research aiming to benefit of PwMS;
- initiate and implement cross-border projects to improve the living conditions of PwMS (e.g. in the field of therapies, employment, social security, infrastructure, etc.);
- act as information platform by exchanging knowledge and best practices relevant to the work of the national MS member organisations;
- enhance a general awareness on MS by informing and educating external audiences;
- and to support national MS Societies both recent and long-established in Europe.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
European Health Management Association Limited [EHMA _FY2012]
EHMA`s aim is to improve the quality and build the capacity of health management across the European region. As EHMA`s statutes state, the Association seeks to "improve health management and health po...
EHMA`s aim is to improve the quality and build the capacity of health management across the European region. As EHMA`s statutes state, the Association seeks to "improve health management and health policies through the development and exchange of both ideas and practices among academics, researchers, managers, clinicians, policy makers and consumers throughout Europe."

EHMA structures its vision under multiannual, strategic areas which underpin each year`s workplan: Quality and Inclusion in health and healthcare; Innovation in health management; and Sustainable Health Systems; underpinned in all three areas by Leadership and Knowledge Transfer.

1. Quality and Inclusion: We aim to support high quality healthcare for all service users, led by outstanding managers, supported by appropriate policy frameworks and underpinned by the best available research.

2. Innovation: We want to see innovative health management and research that thinks radically about service provision and public health for the good of all citizens.

3. Sustainable health systems: We want to see health systems equipped to respond to current and future challenges in a way that safeguards health for all.

> Leadership: Leadership is key to EHMA`s work. In the health domain leadership is not only essential in driving change but to maintaining high standards in service delivery. Leadership also increases health management capacity through setting direction and strategy.

> Knowledge Transfer: developing innovative approaches to knowledge transfer is a critical issue in European healthcare, both between different countries or regions, and between practice, policy and research communities. Through knowledge transfer EHMA aims to support the dialogue between researchers and policy makers, and policy makers and health managers. The ultimate goal is to support development of both practice and policy agendas through dialogue.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
EUROPA DONNA - The European Breast Cancer Coalition [ED_FY2012]
MISSION: EUROPA DONNA - The European Breast Cancer Coalition (ED) is an independent, non-profit pan-European coalition of affiliated grassroots groups whose mission is to ensure that all women have ac...
MISSION: EUROPA DONNA - The European Breast Cancer Coalition (ED) is an independent, non-profit pan-European coalition of affiliated grassroots groups whose mission is to ensure that all women have access to accurate information and the highest quality breast cancer screening, diagnosis and treatment. We are widely recognised to be Europe`s BC advocacy organisation, with 17 years experience advocating for evidence-based best practice breast services.

VISION: ED provides critically important advocacy, education and information with the aim of:
- greatly INCREASING EARLY DETECTION and thereby drastically DECREASING MORTALITY resulting from breast cancer
- bringing the QUALITY OF TREATMENT to the highest level for ALL women suffering from breast cancer and thereby DECREASING MORTALITY resulting from the disease
- increasing PREVENTION, by promoting and educating all European women about healthy lifestyle practices

ED`s general objectives are its Ten Goals, which are based on the aims enshrined in its Constitution. We seek: to promote the dissemination and exchange of factual, up-to-date information on breast cancer throughout Europe; to promote breast awareness; to emphasise the need for appropriate screening and early detection; to campaign for the provision of optimum treatment; to ensure provision of quality supportive care throughout and after treatment; to advocate appropriate training for health professionals; to acknowledge good practice and promote its development; to demand regular quality assessment of medical equipment; to ensure that all women understand fully any proposed treatment options, including entry into clinical trials and their right to a second opinion; to promote the advancement of breast cancer research.

VALUES: ED provides women in member countries with scientifically proven info, evidence-based education and tools, a sense of cross-border solidarity and the collective power necessary to bring about change while reducing inequalities betw countries.

The above are communicated to stakeholders on ED websites, publications and at events.
Start date: 01/01/2012 - End date: 01/01/2013
Keywords : [ Breast ] [ Impementation ] [ women ]

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
European Patients' Forum [EPF_FY2012]
-Vision:
Patient-centred, high quality, equitable healthcare for all patients throughout the EU.
-Mission:
To be the collective patients` voice at EU level, manifesting the solidarity, power and unity...
-Vision:
Patient-centred, high quality, equitable healthcare for all patients throughout the EU.
-Mission:
To be the collective patients` voice at EU level, manifesting the solidarity, power and unity of the EU patients` movement,and provide a strong and united patients` voice to put patients at the centre of EU health policy and programmes.
-Core values/guiding principles as agreed in the Strategic Plan:
- We are patient-centred and right-based
- We combat discrimination on the grounds of illness and address health inequalities from the perspective of patients
- We advocate a holistic approach to healthcare issues that includes the social, economic,cultural, environmental and mental health agenda for patients, carers and families
- We foster the empowerment of patients, carers and their families by breaking down attitudinal barriers and prejudice regarding patients` place in society as equal citizens
- We consult and build consensus within our membership to address the EU policy issues that have an impact on the patient community
- We are an independent organisation, transparent in all our operations-financial, policy,communications
- We are an open and inclusive organisation and strive to ensure that our work also reflects the opinion of potentially marginalised and under-represented patients,carers and families
- We have a strong commitment to gender equality
Additional values informing our work are:
- We foster the meaningful involvement of patients through empowerment by breaking down attitudinal barriers regarding the place of patients in healthcare and society as equal citizens
- We encourage effective,inclusive and sustainable patient organisations throughout the EU
- We are committed to giving a voice to underrepresented patients, including young patients and reaching out to all ethnic and cultural patient groups
- With regard to ethical issues,EPF respects recognised European and International instruments protecting human rights.
Our vision and core values inform EPF`s policy and programme work, external communications and collaboration.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Interest groups