Interest groups / Projects

Second Programme of Community action in the Field of Health 2008-2013
European Federation of the Associations of Dietitians [EFAD_FY2012]
Mission: To support Member Associations in developing the role that dietitians have in reducing inequalities & improving nutritional health in Europe.
Vision: EFAD, national dietetic associations (NDA...
Mission: To support Member Associations in developing the role that dietitians have in reducing inequalities & improving nutritional health in Europe.
Vision: EFAD, national dietetic associations (NDAs) and dietitians are recognised leaders in the field of dietetics and nutrition. We will continue to pro-actively initiate & grow partnerships in order to improve nutritional health, reduce socioeconomic health inequalities & contribute to economic prosperity. To achieve our vision, EFAD supports the highest quality of dietetic education, professional practice, research activity & partnership.
Values: EFAD is a not-for-profit body pursuing no political or religious ends. Our values of fair, open, non-discriminatory, supportive & ethical behaviour guide our decisions, approach to partnership, communication & collaboration with our stakeholders.
Strategic Aims: EFAD supports its members to:

� develop dietetics on a scientific & professional level in the common interest of members
� facilitate communication between NDAs & other organisations: professional, educational & governmental
� encourage better nutrition for the population of Europe
� promote the development of the dietetic profession

By embedding dietetic education, professional practice and research activity in dietetics, we enable high quality engagement at all levels, thus addressing health determinants and creating supportive environments for healthy lifestyles & prevention of disease through nutrition.
Communication of our aims and objectives is achieved by fostering exchange of knowledge, best practice promotion and action with and between our stakeholders. EFAD is a member of key NGOs (eg EPHA, ENHA, EFPC) and the EU Platform (Diet, Physical Activity and Health). We gather/disseminate information through NDAs, newsletters (EU Thematic Network DIETS), papers, reports, conferences and the website. Our stakeholders include dietetic associations, dietitians, citizens, key national ministries, higher education institutions, food industry, policy-makers and other health professionals. Our engagement wi
Start date: 01/01/2012 - End date: 01/01/2013
Keywords : [ Obesity ]

Call: Promote Health (Hp-2010)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
Alzheimer Europe [AE_FY2012]
Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services"....
Alzheimer Europe (AE) defines its mission as "changing perceptions, practice and policy in order to improve the access of people with dementia and their carers to treatment options and care services". In addition, the organisation has defined its guiding philosophy as "promoting the autonomy and self-determination of people with dementia and their carers throughout the course of the disease".
To achieve its mission and accomplish its vision, Alzheimer Europe has developed four objectives in its strategic plan (2011-2015) which was developed within the framework of its 2010 Operating Grant:
1. Making dementia a European priority through representing the interests of people with dementia, partnering with European institutions and jointly developing policy;
2. supporting policy with facts by improving the information exchange between AE, its members and other stakeholders, by setting up a European Dementia Observatory and by comparing national systems and identifying best practices;
3. basing our actions on ethical principles by understanding ethical principles and approaches, promoting a rights-based approach to dementia and finding common ground and building consensus on ethical issues;
4. building a stronger organisation by supporting and involving national associations, involving people with dementia and their carers, establishing AE conferences as unique networking opportunities, developing strategic partnerships, providing a sound governance structure and diversifying the organisation`s funding.
On the basis of these strategic objectives, Alzheimer Europe develops annual work plans outlining the priority areas and projects of the organisation.

Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
EPF_FY2013 [EPF_FY2013]
Our mission is to be the collective patients voice at EU level, manifesting the solidarity, power and unity of the EU patients movement, and provide a strong and united patients voice to put patients ...
Our mission is to be the collective patients voice at EU level, manifesting the solidarity, power and unity of the EU patients movement, and provide a strong and united patients voice to put patients at the centre of EU health policy and programmes.
Our vision is patient-centred, high quality, equitable healthcare for all patients throughout the EU.
Core values/guiding principles as agreed in the Strategic Plan:
-We are patient-centred and right-based
-We combat discrimination on the grounds of illness and address health inequalities from the perspective of patients
-We advocate a holistic approach to healthcare issues that includes the social, economic, cultural, environmental and mental health agenda for patients, carers and families
-We foster the empowerment of patients, carers and their families by breaking down attitudinal barriers and prejudice regarding patients place in society as equal citizens
-We consult and build consensus within our membership to address the EU policy issues that have an impact on the patient community
-We are an independent organisation, transparent in all our operations-financial, policy, communications
-We are an open and inclusive organisation and strive to ensure that our work also reflects the opinion of potentially marginalised and under-represented patients, carers and families
-We have a strong commitment to gender equality
-We encourage effective, inclusive and sustainable patient organisations throughout the EU
-We are committed to giving a voice to underrepresented patients, including young patients and reaching out to all ethnic and cultural patient groups
-With regard to ethical issues, EPF respects recognised European and International instruments protecting human rights.
These core values lie at the heart of our organisation - they define who we are, how we work and what we stand for. They not only inform our advocacy/campaign and programme work, but also guide the way we build alliances and partnerships. Our communication strategy ensures that these values are effectively shared with the patient community
Start date: 01/01/2013 - End date: 01/01/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2012)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
EURORDIS_FY2013 [EURORDIS_FY2013]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of approximately 30 million citizens in the EU.

...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of approximately 30 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

- Empowering RD patient groups
- Advocating RD as a public health priority
- Raising public awareness on RD
- Improving access to information, treatment, care and support for PLWRD
- Improving quality of life
- Networking activities
- Capacity building
- Encouraging good practices in relation to these issues
- Promoting scientific and clinical research on RD
- Promoting the development of treatments and drugs for people living with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD: participation to the EU Committee of Experts on RD (EUCERD) and related road map,elaboration of National Plans or Strategies on RD, European Commission Communication and Council Recommendations in the field of rare diseases, Cross Border Health Care (CBHC) and patient`s mobility, as well as in the implementation of EU Regulations on Orphan Drugs, Paediatrics and Advanced Therapies Medicinal Products (ATMPs) through participation in the EMA Scientific Committees.
Start date: 01/01/2013 - End date: 01/01/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2012)
Topic: Interest groups
Second Programme of Community action in the Field of Health 2008-2013
HAI_FY2013 [HAI_FY2013]
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals. HAI`s mission and goa...
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals. HAI`s mission and goals follow an overarching global work programme set every five years. HAI Europe devises plans and strategies to inform medicines` policy in Europe and acts as a regional coordinating centre.

HAI`s mission is:

- To increase access to essential medicines: Ensuring that medicines meeting priority healthcare needs are available, accessible and affordable to all;

- To improve the rational use of medicines: Ensuring that all licensed medicines meet real medical needs, have therapeutic advantages, are acceptably safe, offer value for money and are appropriately prescribed, in tailored doses, for an adequate time at the lowest cost to citizens and their community;

- To promote the participation of citizens in medicines policy: Encouraging and supporting the participation of patients and consumers in decisions that will affect their health and well-being, whilst advocating for the highest levels of transparency, independence and accountability in all aspects of medicines policy.

HAI Europe monitors and encourages EU policy-making around these three thematic priorities. HAI Europe works by implementing innovative methodologies that generate key data, develop and publish key publications and commentary as well as promote knowledge exchange on the impact of medicines policy on public health. The paucity of coherent medicines policies in Europe has driven HAI`s unique focus over the last 30 years and continues to be at the centre of HAI`s research, advocacy, capacity building and expertise, and as a result, has established HAI`s reputation as an authority on pharmaceutical policy issues.

HAI`s vision is:

Poverty and social injustice represent the greatest barriers to sustainable health and development and HAI works for a just and equitable society where people can participate in decisions affecting their health and well being, including the allocation of resources.

Start date: 01/01/2013 - End date: 01/01/2014

Call: Promote Health (Hp-2012)
Topic: Interest groups